Equity as a Public Health Priority

“Is cervical cancer a big problem in South Africa?” This is a question I get, in some form or another, from many people back home when I tell them about the project I’m working on in Johannesburg.

The short answer? Yes.

Urban hiking in the Melville Koppies

The long answer? Yes, cervical cancer is a major public health issue in South Africa and many other African countries. UNAIDS estimates that women living in Eastern and Southern Africa are 10 times more likely to die of cervical cancer than women living in Europe. Within South Africa, Black women are almost twice as likely to be diagnosed with cervical cancer compared to White women.

Over 90% of cervical cancers are preventable, and the UNC-Wits-Right to Care team is working to increase access to prevention services in South Africa. Routine vaccination against HPV, the cause of most cervical cancers, did not begin in South Africa until 2014. And, although cervical cancer screening is free, only a third of South African women receive screening at the recommended intervals.

Rendani modeling her Right to Care jacket

In our classes, we learn about criteria used by governments, organizations, and funders to determine public health priorities: the number of people affected, the magnitude of a disparity, the evidence in favor of intervention, the cost (in dollars, years of life lost…) of action or inaction. By any measure, cervical cancer is indeed a public health problem, and these statistics are important–they tell the story of a disease that is almost entirely preventable, yet continues to kill hundreds of thousands of women every year.

At the same time, I have been thinking about how we frame public health problems, and what larger dynamics these measures can obscure. Cervical cancer is a disease of inequities, and confronting the social conditions that give rise to unequal health outcomes (in the words of Link and Phelan, their fundamental cause) must also be part of addressing this problem.

Public health is not immune from reproducing the patterns of inequity that we seek to solve. As a student, I have concentrated on gender and other social inequities as they impact women’s reproductive health. These dynamics are also reflected in gender inequality in the global health workforce and geopolitical inequalities that influence public health priorities. If the goal of global public health is “real partnership, a pooling of experience and knowledge, and a two-way flow between developed and developing countries,” we have a long way to go until this vision becomes a reality.

Recently, leaders at the National Institutes of Health pledged to take steps to end the “manel”– all-male speakers panels–and increase diversity in global health leadership. In his statement, Dr. Collins, Director of the NIH (and UNC School of Medicine grad), writes, “it is not enough to give lip service to equality; leaders must demonstrate their commitment through their actions.”

Shadow Boxing by Marco Cianfanelli in the Joburg CBD

It is an incredible privilege to be in South Africa doing work that I find important, challenging, and fulfilling. I feel very lucky to be completing my practicum with UNC-Wits-Right to Care and learning from a team that truly demonstrates this commitment to promoting equality–from increasing access to Pap smears to building partnerships and creating opportunities in global health.

Krista

Hustler Nation & the Jack of All Trades

Visiting new places in Mauritius – Participating in Medical Camps

The island of Mauritius had no indigenous population. People from many countries settled in Mauritius during Dutch, French and English occupancy, and gained their independence in 1968. With land as their only natural resource, the strong development of Mauritius is quite a feat. Currently one of the most competitive economies amongst African nations, Mauritius has successfully diversified its economy to include a manufacturing industry, banking and tourism. Part of this success comes from Mauritians having a “hustling” spirit. With their sacrificial and entrepreneurial attitude, they have been able to create a thriving nation.

This is also this same spirit that has permeated my internships during the last six weeks. When I arrived at local agencies to complete my practicums, the intention was for me to strengthen their monitoring and evaluation processes. However, I have had a chance to gain experience in a variety of settings partly because one needs to be a jack of all trades in Mauritius. This is especially relevant in the non-profit sector, as staff often have to fulfill many roles because of the lack of funding. For about two years now, the Government of Mauritius has mandated that all for-profit organizations contribute most of their Corporate Social Responsibility (CSR) money to a national fund which is then distributed yearly amongst certain NGOs across the island through a competitive application process. The creation of a National CSR Fund was a way to address many concerns that NGOs (or Civil Society Organizations) were facing, such as:

  • Lack of focus on poverty alleviation and assistance to vulnerable groups
  • Lack of transparency in the allocation of CSR funds by companies
  • Difficulty in accessing funds by deserving NGOs
  • Lack of proper monitoring and evaluation of CSR programmes and activities
  • The proliferation of NGOs in order to obtain funds

Previously, NGOs were able to obtain funds directly from corporations — by law, corporations must give 2% of their profits back to society. The transition to this new way of operation has created or exacerbated certain challenges for NGOs. Many of them have had to reduce operations because of lack of funds, while others saw only part of their programmes funded. Both of the NGOs that I work with have had to dedicate more time and resources to securing funding. This has put a strain on existing staff who are attempting to serve in multiple capacities.

Talking about (dis)abilities

In my case, I was fortunate to be able to put my skills as both a social worker and a public health practitioner to use. I ended up acting as a project manager for a programme that empowers individuals with disabilities (the actual project manager was recruited to organize the Indian Ocean Island Games, an international competition that takes place every 4 years in July). Within the context of the empowerment programme, I was also able to facilitate employability training sessions for youth with disabilities and provide them with mental health support. I contributed to an advocacy session on ending child marriage in Mauritius. And interestingly enough, both of the NGOs that I am currently working with have decided to collaborate on a call for proposal, so I am now also grant writing.

Youth with disabilities taking part in employability training

This mode of operation can be challenging at times, since I am never sure how my day will unfold. I am learning to be flexible when I can, and have become creative in terms of when and where I do my work. This has led me to drive to many places in Mauritius that I had never been to. I have also discovered which coffee shops have the best combination of coffee, music level, pastries and WiFi connection — the basic requirements of any hustler nation.

Free services at Medical Camps – prosthesis adjustments and reparations

– Yovania

Salamat, Philippines

Guest blogger, Areej Hussein, undergraduate student in nutrition

Typical fruit vendor in the streets of Cebu city where the infamous and tasty Cebuano mangoes are sold.

As a recipient of the Class of 1938 Summer Abroad Research Fellowship, I had the opportunity to travel to the Philippines this summer to explore my Honors thesis research topic: the impacts of early childhood malnutrition on young women’s reproductive health and childbearing. I traveled to the Philippines extremely nervous at first because I had never done anything like this before. Deciding to spend two months in a country I had never seen before to pursue a research project was something that challenged my comfort zones. Nevertheless, I was excited to embark on this journey where I could meet new people, learn new things, and experience a new way of life.

While there, I was mentored by amazing researchers from the Office of Population Studies Foundation (OPS) at the University of San Carlos in Cebu, whose Cebu Longitudinal Health and Nutrition Survey (CLHNS) is a collaboration with UNC’s Carolina Population Center. My OPS mentor, Ms. Josephine Avilla, has been extremely supportive and a pivotal part of this research project.  Without her guidance and connections, this would not have been possible. My research included engaging in focus group discussions and in-depth interviews with young Filipina women on topics related to relationships and childbearing decisions, an effort to contextualize my quantitative data analyses.

The participants of the focus group were women from Ritazo, a community-based initiative run by women in an urban poor neighborhood in Mandaue City, Philippines. These talented women take scraps of materials donated to them by a furniture company and turn them into beautiful bags and merchandise to generate a source of income for themselves and families. These women, in addition to raising children and maintaining their homes, were earning money for their families and taking on leadership roles in their community. I am forever grateful to these women who trusted me enough to share stories of their livelihoods as they participated in this research project.

In addition to the focus group discussion, I conducted in-depth interviews with young women most of whom work as research assistants at OPS. Unlike the women of Ritazo, these women were closer in age to me and it amazed me how much I was able to relate to them in these interviews. These interviews felt more like conversations I was having with my friends rather than a research-participant style of interaction. These conversations were also insightful and brought to light many themes that would add perspective as I am analyzing the quantitative data. I am currently drafting a detailed summary of my findings, including these themes, intending to disseminate this information to all of the women who participated in this study. I strongly believe that the goal of research should be to benefit the community who graciously agreed to take part in it and who without the research would not exist.

During my stay, I also had the opportunity to attend a two-day data analysis workshop led by my professor and mentor Dr. Linda Adair. This workshop brought together researchers from different institutions across the Philippines to discuss data dissemination and analysis for a national population study carried out by OPS as an effort to better understand the “Filipino child”. It was inspiring to witness the excitement in the room for this kind of work and how invested these researchers were in bettering their country. In this workshop, I also heard stories about research field workers risking their lives to obtain research data. These dedicated researchers would travel to some of the most inaccessible and dangerous parts of the Philippines manually collecting data using pen and paper, which then students and researchers, like myself, have the convenience of accessing on a computer with just a click of a button. Learning about the risks involved in data collection and witnessing the effort that goes into editing and coding the data in the OPS office made me appreciate the research data more.

Akong Pamilia (“my family”) –celebrating my birthday at the office. OPS

While the purpose of my trip was to conduct research, what I gained was far more valuable than data. Here I gained a family that made me feel more at home than an outsider! Many greeting me with “Assalamu alaikum” (a greeting that Muslims use translating to “Peace be Upon you”) even when they were not Muslims themselves was one of the many ways that people tried to welcome me. I also gained a small glimpse of a beautiful culture that embraces everything that is love and community! I gained stories of resilience and faith that left me more than inspired! During a time where I longed to go home to Sudan but could not because of the political unrest, the Philippines became my home! I saw my people in their hospitality and their love for one another! I had an extremely positive experience and I am forever grateful to Dr. Linda Adair, the Class of 1938 Fellowship, and Honors Carolina for their immense support throughout this experience and making it possible!

Beautiful waters of Moalboal,Cebu, Philippines.
In addition to research, I had the opportunity to experience island hopping and explore as much as I can of this beautiful archipelago.

– Areej